Caregivers Connect

I am the caregiver to my adult daughter with Down Syndrome. What brought me to this group though is for the last year and a half my dad has shown significant signs of some type of dementia. He has not been diagnosed yet. My sister and I live 4 hours away from him. My brother lives in the same area as my dad but also has young children and is very busy. It’s been so hard trying to figure out what to do to help him when he is so far away. He lives in a apartment by himself. We dont know what to do with him to keep him safe. He isn’t making good choices as far as money, his diet, and he keeps seeing things. He thinks somone comes through the wall and moves his fridge, trying to steal it. He has called the cops before. He make…

Im so happy I found this group! My 91 year old dad has been living witH this disease for the oast 10 years. He lived with me for 6 years before I needed more help in keeping him safe and placed him in an AL community. He was doing great until he fell in August, while dancing. Since the surgury, rehab, and now reliant on a walker, he has declined rapidly. He is a lot mire aggresive with staff and recently with another patient. (No, he doesnt have a UTI) They have put him on some heavy duty meds that makes him zombie like. I hate this. I have an appointment With his Nuero doctor this week and I hope she can help find a good mix of meds to keep him calm, but still let him live his best life. This is so hard.

Hello friends! I have been following Ms. Phyllis on FB and Insta for a while and just saw about this support group. My name is Jena and I have been caring for my Mama Dot for the last 6 years. She has always come to Florida from Atlanta to visit us for a couple of weeks throughout the year. She was a retired CPA who worked for the state, and when she retired, she just packed her golden retriever Bailey in the car and make the 8 hour journey. Then one time she didn’t ever show up. I was frantic. Her phone was dead and I had no clue where she was. After 2 hours, we called the police. A silver alert was issued and after about 4 hours, a clerk at a gas station about 5 miles from my house called 911 to report an older woman who wa…

I'm just starting this walk with my mom. At 82, she started showing more and more signs after my dad had an unexpected hospital stay and procedure. I really feel the stress triggered the advance. My father has several conditions, some chronic and 2 primary cancers.. he is in palliative care although he may have up to 2 years at this point. I am their caregiver, at 60, and also have a 13 yr old daughter.. so it's a lot. My mom's mother also had Alzheimer's, dying at 94 and so I am very familiar with the progression and what the future holds. I have no siblings, but my husband is as helpful as he can be.. best of all, we live very close to my parents.

I saw a video of Phyllis and I looked up your group.

I hope to gain some insights and inspiration from members of…

Hello. I came from Instagram, where your mother's story touched me as I walked the wretched Alzheirmer's journey with my own beautiful mother.

Her journey with this horrible disease began eight years ago, three years after she lost her husband, my father, to Vascular Dementia. Throughout it all, she never stopped smiling, never stopped singing, and never let us know she was anything but happy. I live several hours away, and fortunately, my sister was able to be with her daily while Mom was a resident of the nursing home. My sister called me every day after lunch or dinner, and I was able to talk to Mom. It was the best part of my day! I started writing a list of things she said that I knew I would want to remember one day. My favorite? One day, when I told her I didn't know anything exciting,  she said,…

Hi, my name is Beth. My Mom, Marilyn is 85 and was diagnosed with Alzheimer’s this past spring. She is now in the middle stages. My oldest brother lives with her and has been caring for her but now we have more people helping as she stopped bathing and getting dressed. They are both planning to move to an assisted living place together soon. I’ve noticed some things on your instagram that people have given as gifts. Do you have links for these items? The Gadget box or the snuggle puppy for example?

Also do you have any good resources on to how to talk with someone with Alzheimer’s. My brother keeps trying to correct her but I don’t think it’s helpful and she gets very anxious at times when he does.

Thank you for creating this! It’s a devastating disease and the grief is overwhelming.

Always, Beth

Welcome to our group Dancing for Memories Caregivers Connect! A space for caregivers to connect and share with each other. Start by posting your thoughts, sharing photos and videos, or creating a poll.