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Dancing for Memories Caregivers Connect

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September 29, 2024 · updated the description of the group.

Welcome to our group Dancing for Memories Caregivers Connect! A space for caregivers to connect and share with each other. Start by posting your thoughts, sharing photos and videos, or creating a poll.



Christine Thiel
Christine Thiel
Oct 01, 2024

What do you find is most challenging as a caregiver?

Finally finished my Moms memory walls. It was a project we did together!

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17 Views
pannwalls
Sep 19

LOVE it!!


New From Florida

Hello friends! I have been following Ms. Phyllis on FB and Insta for a while and just saw about this support group. My name is Jena and I have been caring for my Mama Dot for the last 6 years. She has always come to Florida from Atlanta to visit us for a couple of weeks throughout the year. She was a retired CPA who worked for the state, and when she retired, she just packed her golden retriever Bailey in the car and make the 8 hour journey. Then one time she didn’t ever show up. I was frantic. Her phone was dead and I had no clue where she was. After 2 hours, we called the police. A silver alert was issued and after about 4 hours, a clerk at a gas station about 5 miles from my house called 911 to report an older woman who wa…

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pannwalls
Sep 19

Hello Jenna! Thank you for following my mom and I. And thank you for sharing your and her story, sounds so much like my mom when she was first diagnosed. How scary for you and her when she got lost making that drive to Florida I remember my mom getting lost driving and that was just to her hairdresser's salon a few miles from our house, we had to try and find her along the route because she could not figure out how to get home or to the salon. That was in the beginning of this awful journey. Your mom is so lucky to have you and your husband, don't ever feel like you are failing. You are doing amazing!! I know (along with every other caregiver) just how difficult caring for someone with dementia is. I know you do not want to give your mom sedatives, we felt the same way. They are so strong and at a higher risk of falling. That said, we found a natural sedative that has really worked well. At first we were buying it from a naturalist but then we found one on Amazon that really works. It calms my mom, but she's still alert and responsive (unlike when we give her Ativan). The one I am talking about is called "Passionflower B60 Alcohol-Free Herbal Extract Tincture, Concentrated Liquid Drops Natural". I could share the link with you if you want to email me: pannwalls@gmail.com. Sending love and prayers to you and your mom!!

Hello

I'm just starting this walk with my mom. At 82, she started showing more and more signs after my dad had an unexpected hospital stay and procedure. I really feel the stress triggered the advance. My father has several conditions, some chronic and 2 primary cancers.. he is in palliative care although he may have up to 2 years at this point. I am their caregiver, at 60, and also have a 13 yr old daughter.. so it's a lot. My mom's mother also had Alzheimer's, dying at 94 and so I am very familiar with the progression and what the future holds. I have no siblings, but my husband is as helpful as he can be.. best of all, we live very close to my parents.

I saw a video of Phyllis and I looked up your group.

I hope to gain some insights and inspiration from members of…

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Hi Stephanie. Thank you for sharing your story. I am so sorry for all that you are going through. It's very difficult caring for our parents when we have our own families and children we are caring for as well. You are doing an amazing job managing it all. There are some helpful resources on our site and Dancing for Memories offers other support. If you are in need of something, you can complete a grant application. We'd love to help you on your journey. Sending love and prayers to you and your family.


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