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Welcome to our group Dancing for Memories Caregivers Connect! A space for caregivers to connect and share with each other. Start by posting your thoughts, sharing photos and videos, or creating a poll.
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Dancing for Memories Caregivers Connect
Public·34 members
Im so happy I found this group! My 91 year old dad has been living witH this disease for the oast 10 years. He lived with me for 6 years before I needed more help in keeping him safe and placed him in an AL community. He was doing great until he fell in August, while dancing. Since the surgury, rehab, and now reliant on a walker, he has declined rapidly. He is a lot mire aggresive with staff and recently with another patient. (No, he doesnt have a UTI) They have put him on some heavy duty meds that makes him zombie like. I hate this. I have an appointment With his Nuero doctor this week and I hope she can help find a good mix of meds to keep him calm, but still let him live his best life. This is so hard.
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Genevieve Haldeman
Nov 16
Hello Jana! I am so sorry to hear about your dad. This disease really is so hard. And I know what you are saying about the medications. Oftentimes the side effects are brutal. When they put my mom on Ativan she became a zombie as well, we hated seeing her like that. We tried a holistic medication that has been working really well and she's not as tired and out of it. It's called Passionflower Herbal Extract Tincture
Finally finished my Moms memory walls. It was a project we did together!
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New From Florida
Hello friends! I have been following Ms. Phyllis on FB and Insta for a while and just saw about this support group. My name is Jena and I have been caring for my Mama Dot for the last 6 years. She has always come to Florida from Atlanta to visit us for a couple of weeks throughout the year. She was a retired CPA who worked for the state, and when she retired, she just packed her golden retriever Bailey in the car and make the 8 hour journey. Then one time she didn’t ever show up. I was frantic. Her phone was dead and I had no clue where she was. After 2 hours, we called the police. A silver alert was issued and after about 4 hours, a clerk at a gas station about 5 miles from my house called 911 to report an older woman who wa…
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pannwalls
Sep 19
Hello Jenna! Thank you for following my mom and I. And thank you for sharing your and her story, sounds so much like my mom when she was first diagnosed. How scary for you and her when she got lost making that drive to Florida I remember my mom getting lost driving and that was just to her hairdresser's salon a few miles from our house, we had to try and find her along the route because she could not figure out how to get home or to the salon. That was in the beginning of this awful journey. Your mom is so lucky to have you and your husband, don't ever feel like you are failing. You are doing amazing!! I know (along with every other caregiver) just how difficult caring for someone with dementia is. I know you do not want to give your mom sedatives, we felt the same way. They are so strong and at a higher risk of falling. That said, we found a natural sedative that has really worked well. At first we were buying it from a naturalist but then we found one on Amazon that really works. It calms my mom, but she's still alert and responsive (unlike when we give her Ativan). The one I am talking about is called "Passionflower B60 Alcohol-Free Herbal Extract Tincture, Concentrated Liquid Drops Natural". I could share the link with you if you want to email me: pannwalls@gmail.com. Sending love and prayers to you and your mom!!
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What do you find is most challenging as a caregiver?